Eventually, we just had to press ahead with the operation to remove the ISKD – my weight gain had continued, much to my frustration and although still in a lot of pain with my leg and back they had settled down to a more manageable level. I was also on the waiting list to take part in a Pain Management Programme in Leicester, which I was hopeful would make a difference.
Read MoreI continued to experience regular stress fractures, difficulty walking and was still reliant on crutches at all times, as well as a wheelchair occasionally. Things settled for a while in my late teens but by my early twenties the toll that had been taken on my back …
Read MoreI could easily fill a book when it comes to my medical history and experiences, it is so vast and complex. For now I’d like to share a potted version to bring you up to speed and hopefully see how my experiences thus far have led to the creation of this blog.
Read MoreI have lived with physical dis-ability and chronic pain for 27 years due to a rare bone condition that affects my left tibia and remains only partially diagnosed.
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